Reverse engineering my ADHD test

(nullpt.rs)

175 points | by hazebooth 4 days ago

14 comments

  • usernametaken29 6 hours ago

    I spent a decent amount working on ADHD diagnostics and unfortunately it sucks. To my knowledge, to this day, there isn’t a single reliable biomarker that identifies autism spectrum disorders. It’s usually correlation studies paired with questionnaires which for lack of better words can be described as “incidental” at best. Most z scored tests I know are also developed with small samples, a hundred participants with an outgroup of 20 would already be a LARGE sample. The standard ADHD questionnaire was validated on some 35 people.

    There might be some hope in deep learning, particularly in observing eye movement components to deliver reliable biomarkers in the future, but I’m not so confident any time soon.

    It’s dreadful and fascinating at the same time that defining and testing for ADS has been so elusive for so long…

    • timster6442 4 hours ago

      From a molecular neuroscience perspective, for both ADHD and ASD (autism) you're unlikely to find any pure biomarkers as clean as a disease like huntingtons disease whose mechanism is clearly understood as extra CAG repeats on the HTT gene (a clean mendelian disorder). ADHD is defined by behavior/cognitive symptoms and most all behavior/cognitive diseases are multifactoral, which ADHD is. WES/WGS and GWAS has been done and for familial ADHD and unlike ASD there is mostly no clear monogenic mutation (a single gene that would explain the phenotype) [note monogenic mutations are usually a very small subset of cases but give scientists a look into what pathway/mechanism is causing a multifactoral disease]. Thus it is not for a lack of looking classically, and deficit is speculated to likely manifest as a neural circuit organization or synaptic issue (though the latter is more closely linked to ASD). This is currently impossible (basically) to measure in alive human brain as it requires nanoscopic imaging, note how challenging the fly map was (incomplete IMO as well).

      • genxy 4 hours ago

        ADHD also evolutionary advantages, so there is unlikely to be a single gene that encodes for it.

        • wredcoll 1 hour ago

          Evo-psych is impossible to falsify.

          • Quarrel 3 hours ago

            What are they? Are there papers on this?

            • steve_adams_86 1 hour ago

              There are only papers which suggest this could be true, none that conclusively prove it. That I’m aware of.

              There are some cool studies done where people with a without ADHD are tasked to forage berries. The people with ADHD do better and adhere to foraging patterns which existing theories suggest would be more optimal.

              A lot of the studies like that indicate the individual with the condition might benefit more from ADHD than the group they’re in, but I’m not sure that studies have explored group benefits very much.

              There’s an often cited paper in which nomadic men who carry a certain ADHD-related allele (DRD4-7R, a dopamine reception variant with ADHD traits and novelty seeking) tend to have better nutritional status. I can’t recall much about it or how high quality it is.

            • akoboldfrying 1 hour ago

              1. How is it advantageous?

              2. Assuming it really is: Why would this make it unlikely to be encoded on a single gene? As a layman, the only condition I'm aware of with this "downside but also upside" quality is sickle cell anaemia (downside is anaemia, upside is increased resistance to malaria), which is decided by a single nucleotide change on chromosome 11.

          • Brybry 1 hour ago

            Isn't this true of nearly all mental disorders in DSM-5 and ICD-11?

            We don't really know what mental disorders are and so we don't have objective diagnostic tests for them. [1]

            We just have treatments that sometimes work for some people (and with the replication crisis[2] that sometimes is probably a lower value than expected).

            [1] https://pmc.ncbi.nlm.nih.gov/articles/PMC6732705/

            [2] https://pmc.ncbi.nlm.nih.gov/articles/PMC5835722/

            • anamexis 6 hours ago

              ADHD is not an autism spectrum disorder, is it?

              • usernametaken29 5 hours ago

                That’s my bad for conflating the two. Indeed they are not the same in ICT-11 but! diagnostics is moving towards the direction of treating them the same. ADHD and ASD have extremely high comorbidity and it has been proposed many times to classify them together because the symptoms overlap (difficulties at school, aggressive behaviour or temper, lack of social skills, etc). In fact it has become so difficult to find distinctive features of ADHD both in diagnostics AND treatment (both are usually treated with cognitive behavioural therapy and in more severe cases medication) that it has been proposed numerous times to drop their distinction in the ICT, but this hasn’t happened yet. Good paper to the point:

                https://pmc.ncbi.nlm.nih.gov/articles/PMC4654237/

                • great_wubwub 5 hours ago

                  Autism Disorder with High Distractability?

                • poopmonster 5 hours ago

                  No, however they are often comorbid.

              • 0plus1 31 minutes ago

                An I risking any trouble if I were to open source this test? Based on this writeup?

                • izzylan 4 days ago

                  I took a similar ADHD test. It seemed so easy and simple that I always wondered how it was actually supposed to catch me.

                  Good to know that neurotypical people mostly likely test differently than I did.

                  • _fw 3 days ago

                    I found myself trying to come up with a system that used the position of my hands to “solve” the problem for me.

                    But then I worried if my system worked, I would be misdiagnosed.

                    It didn’t work. I was 98th percentile.

                    Thanks for sharing this!

                    • nullpt_rs 10 hours ago

                      this sounds interesting! would love to hear more about this

                    • a2dam 7 hours ago

                      > At the end, she told me she would review my exam and have the results ready in a few days.

                      Yeah man I can go ahead and let you know early if you want.

                      • johnwalkr 5 hours ago

                        This comment is so funny to me, because I imagine you being distracted to make the comment before making it to the end where the psych did indeed review the new results.

                        Well I only know that because I skipped to the end. Then, while scrolling up I realised I missed the whole side-quest about promising to not cheat the test again, taking the test again, but then "accidentally" finding an exploit the system, and then cheating the test again, but this time cheating even more to see the results.

                        Then, scrolling up more I see that this whole thing started with seeing stars and then buying a telescope on amazon (probably at 3am).

                        And here I am commenting on HN instead of replying to an email...

                        • jaggederest 5 hours ago

                          Brother the test is quick, easy, and painless, and the results can be lifechanging.

                          The other thing is, ADHD in my mind is really a syndrome that starts with a symptom - inattention - that can be caused by so, so many things.

                          I have both, because of course I do, I had a medical problem that exacerbated my ADHD to a significant, significant degree (it's amazing I was able to be a software engineer for so long without treatment). So don't just tunnel vision in... as we tend to be prone to do. Get the whole workup with an experienced clinician, it's so lifechanging it's hard to describe.

                          • johnwalkr 4 hours ago

                            I want to add that the comment is also funny to me because it and the blog post are very relatable to me. I don't mean to dismiss it at all. It's really important to get a good diagnosis for anything like this and not dismiss it or lock into the wrong diagnosis because of your own tunnel vision.

                            You wrote "the test is quick, easy, and painless" but I also want to note that it's not always. Depending on your country, parents, specific doctor, etc it can be very difficult to get a proper diagnosis and help. In some places a big criteria is diagnosis during childhood so if you're 30 or 40 you might have no chance. Or a chance but it depends on your parents retroactively answering a questionnaire, or finding an old report card with the right words.

                            As you said it's life changing to get the right help and I encourage everyone to pursue this.

                            • jaggederest 4 hours ago

                              The thing is, the test is super quick and easy. And then they throw 50 procedurally complex and tedious tasks at someone who can definitionally not do that, and they know that. Kafkaesque.

                              Btw no criticism implied on my end, I'm just now constitutionally incapable of not telling people they should get screened. Hmmm I wonder why I have difficulty resisting that urge...

                              • johnwalkr 4 hours ago

                                I think I get your point. It's cruel to require Kafkaesque testing and that just makes it not worth it try. But too simple of a test can also misdiagnose.

                                The chance to be diagnosed with an appropriate gate varies greatly based on where you live and which doctor you can see and more. It can be anything from a 5 minute conversation, to 6 months of inconvenience, to no chance of even existing in your lifetime, to suck it up and don't ask because your career will end.

                                • jaggederest 3 hours ago

                                  Right let me be very explicit: TOVA or equivalent are basically "play video games for 10 minutes as a part of your diagnosis" like the OP, the kafkaesque part is getting the appointment, and getting them administered, getting the diagnosis confirmed, going through the records and getting the prescriptions, everything around it :) they're actually pretty sophisticated tests, despite their palatability - I think if they had better ones they'd obviously use them.

                                  • tacticus 41 minutes ago

                                    "Sorry the psych is no longer available today. your appointment has been moved to the next available booking in 9 months time"

                              • NortySpock 1 hour ago

                                " diagnosis during childhood so if you're 30 or 40 you might have no chance "

                                Huh? You don't have to be tested as-a-child, you don't have to call up your fourth grade teacher. You can self report your subjective experience.

                                "Did you have these problems as a child? Have you always had trouble doing your homework? Did stressing out about homework enable you to do the homework?"

                                They ask the question a few different ways typically.

                                I get it, perhaps it is different in your area, but I get the impression that an adult ADHD diagnosis is far from impossible.

                                • tacticus 40 minutes ago

                                  Only recently in aus did an adult diagnosis get support from the government PBS scheme. And even then it's because they're letting retroactive childhood diagnoses be considered for the subsidised medication options.

                                  • jaggederest 1 hour ago

                                    In some countries it's almost impossible (I don't have any direct experience but I've heard tale that in e.g. aus/nz, east asia, south asia, etc people give up before getting diagnosed often), and my understanding is that in Europe it's virtually unheard of to have an adult diagnosis.

                                    In the US, at least, it ranges from difficult to straightforward, but that's not true everywhere

                            • hungryhobbit 5 hours ago

                              I know this is a joke, but I'd be careful about assuming: I had a trained therapist diagnose me with ADHD ... incorrectly.

                              It turns out, there are other conditions out there that can appear to be be ADHD. If a trained therapist can confuse them, outside observers certainly can too, so it is possible that "very ADHD-acting" person you know might not have it.

                              (Or, especially for females, the reverse can be true, as not everyone with ADHD manifests with the same trademark hyperactivity.)

                              • pstuart 3 hours ago

                                I understand this is your personal medical info, but could you drop any hints as to the nature of the misdiagnosis? I've learned late in life that I am neurospicy and learning from other's experiences in this domain has been quite helpful.

                                • annzabelle 1 hour ago

                                  I listen to a lot of psychiatry podcasts, and they generally think that ADHD is being seriously overdiagnosed at this point.

                                  Executive dysfunction, especially that which was not impairing as a child, has a lot of potential causes. Anxiety, depression (yes, ADHD can cause these, but these can also cause executive dysfunction in people without ADHD), OCD, Bipolar (manic people in particular often attribute worsening of hyperactivity and distractability to ADHD instead of mania), Schizophrenia pretty much universally is related to cognitive symptoms and lowered motivation even when not psychotic, and borderline personality disorder can cause changes in interests and identity.

                                  For many of these conditions, stimulants can act as a band aid on something else. It can superficially make people feel better (of course, it's speed), but it can distract from other symptoms that are impairing functioning, and prevent people from seeking long term solutions.

                                  • pstuart 1 hour ago

                                    I can roll with that. I do have executive dysfunction and other "fun" facets of a funky neurobiology. I also recognize that every body and mind is different and it's a personal journey to find the right tools.

                                    I recognize that non-medical options should always be front line approaches but there can be a chicken and egg effect as to making that happen.

                                    In my youth I adhered to a "better living through chemistry (wink wink)", I do now too (rip Mitch Hedburg) but the wink wink part is very rare and disciplined and now it's all about pharma and supplements to wring what I can out of what I've got left.

                                    • annzabelle 1 hour ago

                                      On the non-medical options front, I will note that my lifelong hyperactive and neurotic tendencies dramatically improve with a 3-4 day a week distance running training regimen. I enjoy running enough, even though it is very difficult, that I've kept up with it for several years. I'm not as consistent about this, but I also found yoga classes to be a way to make mindfulness fun and easier.

                                      That's not to say I'm not on the medication train (despite moaning about medications a lot). I do personally avoid taking any controlled substances. This is easy because I hate how stimulants make me feel, but in general I worry about the effects of having a direct reward signal from taking a pill.

                            • nullpt_rs 10 hours ago

                              hi! author here, please let me know if you have any questions :-)

                              • jaggederest 6 hours ago

                                No questions, but feedback for you from an engineer in a similar situation (late diagnosis), make sure you go back and get them to check for every other thing under the sun. You really don't want to dive into the ADHD side and find out it was something else (other things can masquerade as ADHD), so a good neuropsychologist is critical. And "body medicine", too, for example adrenal disorders. It's worth being extremely thorough at this point - you're off the standard path, embrace it.

                                Also, congratulations, once you figure it out your life is going to change for the better in a way you can't currently understand (literally, lacking the brain regions and/or development for it, take it from me), but the process can kinda suck a lot, so stick with it, it's worth it in the end, wherever you end up.

                                • mrbenjihao 7 hours ago

                                  Would you mind sharing the test platform?

                                  • freehorse 4 hours ago

                                    Not OP but I think it is moxo.ai

                                  • johnwalkr 5 hours ago

                                    I have a question (and please take it in jest)! In between buying a telescope, seeking out an opinion on ADHD, accidentally hacking an online test, and then blogging about it, how many things on your todo list(s) did you not do?

                                    • nullpt_rs 4 hours ago

                                      I actually wanted to make a YouTube video for this as well! I also have a few more web fingerprinting blog posts in the backlog T_T

                                  • agentdev001 7 hours ago

                                    Have you got some fancy scroll thing for your blog? Something in my brain is noticing that scrolling feels smoother than your average site, though maybe im crazy.

                                    • nullpt_rs 4 hours ago

                                      I do not! Other than when clicking a section from the table of contents. Is it distracting?

                                    • BearOso 10 hours ago

                                      Following through on the top comment, surely you realized when you decided to forgo the back half of the test that, had the program compensated for it, you were consciously leaning into the ADHD diagnosis, right?

                                      • nullpt_rs 9 hours ago

                                        Sure! However, I think at that point I just felt trapped and overwhelmed that I no longer cared about the test or its results.

                                        • jaggederest 6 hours ago

                                          Which is exactly how it manifests, at least for a lot of people. ADHD isn't just "I can't focus lol", it's "trying to focus feels like dragging myself through broken glass"

                                          He says while commenting on HN as CI runs...

                                    • burnto 2 hours ago

                                      What a lovely mini journey. Turns something possibly stressful into something weird and fun.

                                      • flysand7 4 days ago

                                        Opening up devtools during ADHD test is so ADHD, almost as if he didn't even need the psychiatrist to explain the results :D

                                        • Muromec 6 hours ago

                                          That doesn't have to be ADHD, could be the *tism too. The tells are usually somewhat overlapping.

                                          In general, if you are in the industry, save yourself (and your kids) some trouble and get diagnosed before it becomes a problem.

                                          Add: I wonder why they don't just give people some ritalin and ask if they feel calmed down? Except the obvious reason of course

                                          • gavinmckenzie 6 hours ago

                                            That’s basically how the end of my diagnosis went because aspects of my results were borderline, so she suggested that I just try meds to see. But keep in mind that only one type of ADHD involves being hyper. Some of us are inattentive types where our brain feels like an old 70s pony car engine, and if you pull up to a stoplight you need to keep the motor revving or it will stall. Taking Ritalin for us is the equivalent of keeping the revs up.

                                            • jaggederest 3 hours ago

                                              If you're borderline, talk to the doc about a trial of guanfacine. (note that some people HATE it, for exactly this reason) It's the opposite - if your engine is always redlining, it sets a rate limiter and gives you the chance to look out the window and enjoy the scenery, metaphorically.

                                              And in the most interesting cases, you can find a lot of value in both - stimulants keeps you going, guanfacine gives you perspective and the ability to unclench.

                                              • austhrow743 3 hours ago

                                                As an ADHD person who was already planning to ask my psychiatrist if we can try different medication at my next appointment, thank you very much! That description sounds exactly like what I want to achieve.

                                                • jaggederest 3 hours ago

                                                  I cannot overstate the degree to which it has been lifechanging, after years of trials of various other things. Honestly it was overwhelming - like a months-long mild psychedelic trip. I never want to go back. I am much, much less of an asshole now, and I say that advisedly. (note: lower assholery indicates nothing in absolute terms - I am probably still quite a bit of one. But less! and gratefully, joyfully so.)

                                                  Edit: And this is me trying to restrain myself so I don't look like someone starting a cult...

                                              • acjohnson55 2 hours ago

                                                This is the case for me. I finally got diagnosed last year and prescribed Ritalin this year, and it has been transformative in aiding me in getting out of ruts/stalls.

                                                • poopmonster 5 hours ago

                                                  Great simile. That really is how it feels.

                                                • jaggederest 3 hours ago

                                                  So this is the cheats with "give everyone ritalin and see how they feel" - it works for most neurotypical folks too. It's just a very small increase compared to the annoyance and side effects, so it's usually not worth it. To extend the car analogy from a sibling comment, putting race fuel in a volvo.

                                                  So they can't test by response, because everyone would be like "yeah I can focus better", you have to test with the drug on, and the drug off, to see whether the "horsepower increase" is worth the fuel price. Increasingly strained metaphors are my strength.

                                                  • aidenn0 6 hours ago

                                                    > Add: I wonder why they don't just give people some ritalin and ask if they feel calmed down? Except the obvious reason of course

                                                    I have been screened a few times for ADHD and each time was found to obviously have it.

                                                    Ritalin does not make me feel calmer. I have been told by those close to me that there are externally visible improvements in my behavior. At doses to reach that effect, it also impacts my sleep quality enough that I don't take it.

                                                    Adderall causes mild symptoms of psychosis and mania before it has any theraputic effect.

                                                    Dexmethylphenidate (aka Focalin) has identical theraputic effects to ritalin, but slightly reduced side-effects.

                                                    • fv3y 5 hours ago

                                                      I'm still on my journey of finding meds (and dosages) that work but I would highly recommend for anyone who has a inattentive scatterbrain to try lis/dexamphetamine.

                                                      Methylphenidates can be quite numbing (zombifying) in my group of ADHD friends but dex seems to have a more consistenly helpful effect. The unfortunate caveat for me is that I personally seem predisposed to pelvic floor/urinary issues, which you'll find anecdotal evidence of being exacerbated by amphetamines (research seems yet to catch up), but aside from that the theraputic effects, particularly in emotional regulation seem so far unmatched.

                                                      It's unfortunate we have such a tentative model of how our body and, particularly, our minds work so drug treatments often require a trial and error process.

                                                      • throwawaya7e81f 5 hours ago

                                                        I have exactly the same problem with pelvic floor and urinary issues when I take adderall, although with continued use and PF therapy it's gotten moderately better (and my dr and I decided that the benefits outweighed the risks and issues).

                                                        I found methylphenidate-based drugs to be useless after a few days.

                                                        Have you tried pure lis or dexamphetamine? I know dex can be prescribed without the mixture, maybe lis can too. I keep meaning to ask my doctor about it.

                                                        The other issue I find is tolerance, though even with this I'm still far more focused than when I'm not taking adderall. It really is amazing how much better it makes me feel. I find no problem with addiction whatsoever -- if I forget to take it, then I just have full blown ADHD, but I'm no worse off. I also find it's more effective if I minimize coffee, but I haven't yet cut coffee entirely. (I find caffeine is vastly more addictive than amphetamines.)

                                                      • annzabelle 2 hours ago

                                                        I have similar stimulant intolerance since I developed bipolar 1 in my late teens (had been diagnosed with ADHD at 7). I was off ADHD meds for several years, and have now tried a few of the nonstimulants.

                                                        Strattera was subtle, but I had clearly improved feedback at work, a cleaner apartment, and no side effects.

                                                        Qelbree caused a lot of nausea.

                                                        Intuniv caused lightheadedness and got me an unnecessary cardiac workup.

                                                        Wellbutrin doesn't have as much ADHD efficacy as Strattera (my doc won't let me take both at the same time), but it improved my seasonal depression and motivation significantly. I had some irritability for the first few days after a dose increase, but otherwise the only side effect is reduced hunger and I also stopped asking people for cigarettes or zyns when I'm drunk.

                                                        • scrapcode 5 hours ago

                                                          I'm nearing my 40s. In my mid-twenties I was diagnosed and over the next couple of years tried all of the usual ADHD meds and none of them were short of terrible in regard to side effects. I guess I've just learned to live with it in a way that outweighs the side effects I get from the drugs.

                                                          I was diagnosed with Shiftwork Disorder at one point in time and was prescribed Modafinil and it was incredible for the most part and had zero side-effects, but my doctor wont prescribe it for ADHD. One down-side to Modafinil is that I could get stuck on an unproductive task and would realize in hindsight that I had just been hyper-attentative to this unimportant task for hours.

                                                          • jrapdx3 4 hours ago

                                                            Studies show Modafinil isn't effective in ADHD adults. It may have benefit in children with ADHD.

                                                            I think many prescribers give ADHD adults a high dose too soon causing side-effects. In my experience, it's best to start with a low dose and slowly increase as necessary. The myth is ADHD responds quickly, but observing hundreds of patients it takes months, not days, for benefit of treatment to develop. There's wisdom in the phrase, "start low and go slow".

                                                            • jaggederest 3 hours ago

                                                              Yep. What you find often is that the drug is effective right away, at a 20-30-40% effectiveness level. But over time you learn to take advantage of the benefits more effectively, and get more used to the side effects, so it tends to increase significantly in effectiveness at the same dose over 6-8 weeks much like SSRIs, not because the effects last that long, but because you use the tools to improve the tools.

                                                            • annzabelle 2 hours ago

                                                              Have you gone down the rabbit hole of non stimulants?

                                                              I have had bad reactions to every stimulant I tried since I developed bipolar 1 in my late teens (had taken them as a child for ADHD).

                                                              I had a good response to strattera, but there's a variety of them out there.

                                                            • Muromec 5 hours ago

                                                              > it also impacts my sleep quality enough that I don't take it.

                                                              Yeah, it's basically why I don't bother with it. I know it works, but trading one set of problems that I know how deal with for a different set of problems that needs more meds isn't appealing at all.

                                                              • pstuart 3 hours ago

                                                                I had a doc that prescribed me amphetamine. It was glorious for work, being in one of those horrendous open table environments with only a screen in front of you to keep from staring at the person directly across.

                                                                I was able to laser focus and jam through things but the side effects were not worth it and I backed off. I've yet to find a magic pill that does that without the side effects.

                                                                • jaggederest 3 hours ago

                                                                  PSA: depending on your specific needs, guanfacine can be close. Once you get used to it, it can be just... constant +1 to wisdom.

                                                                  • pstuart 1 hour ago

                                                                    Thank you! It seems worthy of pursuit -- gonna bring that up with my doc.

                                                              • jrapdx3 4 hours ago

                                                                > ... I wonder why they don't just give people some ritalin and ask if they feel calmed down? Except the obvious reason of course

                                                                In ADHD (and most conditions) diagnosis by medication response is not acceptable. Response to drugs is highly variable and fails criteria for acceptable tests. Also drugs can produce side-effects. According to professional standards, it's unethical to expose people to nontrivial risks without good cause.

                                                              • schlauerfox 10 hours ago

                                                                That was my first thought. I only wish my type was to put in the work for a blog post instead of just thinking on it and getting overwhelmed with all I need to get done.

                                                                • nullpt_rs 9 hours ago

                                                                  Trust, this blog post was in the works for weeks and was actually supposed to have a YouTube video accompanying it that I never finished T_T

                                                                • nullpt_rs 10 hours ago

                                                                  I didn't think of this until after haha

                                                                • doawoo 10 hours ago

                                                                  This is basically what I did to every online based quiz in school. Big respect lol.

                                                                  • nullpt_rs 10 hours ago

                                                                    this method works more often than not :P

                                                                  • rukuu001 5 hours ago

                                                                    > This performance pattern^H^H^H^H^H^H BLOG POST may indicate attentional difficulties, and taken together with other findings, an increased likelihood for the existence of ADHD.

                                                                    • kleton 4 hours ago

                                                                      There's a well-known issue of "construct validity" in neuroscience.

                                                                      • tomrod 5 hours ago

                                                                        Oh hilarious and well done Null ptrs.

                                                                        And brilliant picture.

                                                                        • sbiru93 10 hours ago

                                                                          Ahahah the end got me laughing

                                                                          • pixel_popping 10 hours ago

                                                                            Great article!

                                                                            ADHD is way more complex than just an attention issue, I mean just the amount of average daydreaming and "rumination" and the constant multi-threading of thoughts... is just next level, I believe it's not properly explained to outsiders that might just think that X guy just have a hard time going in the flow but in reality it's much more catastrophic than this and will create many more mental health issues if left unmanaged.

                                                                            Most ADHD people that have jumped on some sort of strong treatment (stimulants in general) are discovering a new world in pretty much 1 hour, the first time the mind goes "quiet" is incredible. I advise everyone to read more on this website https://www.adxs.org/en - it's also friendly to scrape to be used with LLMs.

                                                                            ADHD isn't a good thing to have imo, it's a serious dysfunction and it's sad to see that it's being romanticized lately in social media or plainly discredited by some people/media, and while treated ADHD can make you productive "all the time", you end up addicted and pretty much permanently require drugs to function well.

                                                                            • LocalPCGuy 10 hours ago

                                                                              I agree that ADHD is a serious condition for many people, and that it's overly romanticized and that isn't good when it comes to getting help for those that do need it.

                                                                              To that point, I'm going push back on this language just a bit:

                                                                              > you end up addicted and pretty much permanently require drugs to function well

                                                                              That is negatively framing medication, which if taken properly as prescribed is no different than any other medication someone might take to help with a chronic health condition. It slightly encourages and leans into the idea that ADHD is "fixable" without medication and so taking medication is a problem (or due to a weakness, etc).

                                                                              I'm not discounting the value of other forms of non-medical treatment, but in many case medication IS appropriate as part of the overall treatment that a person requires to manage their ADHD. We should not use language that stigmatizes treatment that should be between a person and their doctor.

                                                                              • nullpt_rs 10 hours ago

                                                                                Agree with original commenter but +1 to reframing the language. I was very afraid to begin medication because I would always hear about how addicting this medication can be. But like you say, you wouldn't tell someone with diabetes that they're addicted to insulin.

                                                                                • paimapi 9 hours ago

                                                                                  fully agreed with this. it's the same stigma that I see get applied to SSRIs - that you become 'dependent' on medication, it's not 'natural', etc

                                                                                  in reality, if the side effects are minimal and you function better on it, it's a sip of water and a pill a day and that's largely it for health outcomes. most drug interventions are generally extremely well-studied with very large sample sizes. there's a reason why clinical research is considered gold-standard - the regulatory requirements to even get a drug to market is monumental and some of the most rigorously audited and vetted processes in the world

                                                                                  the ironic thing is that most of the big pharma detractors are also ingesting dozens of supplements, the vast majority of which have little to no good empirical evidence backing them (and very small effect sizes to boot) along with even less regulatory oversight for issues like contamination, formulation, or if it even contains the active ingredient. which isn't to say that 'big pharma' doesn't often pursue avenues for profitability reasons instead of the public good but that's not the typical critique that an anti-empiricist brings most times

                                                                                  • jaggederest 6 hours ago

                                                                                    I'm addicted to several things. Like eyeglasses, and breathing.

                                                                                    The difference the medication makes is similarly revelatory to putting on eyeglasses. Of course you never want to take them off.

                                                                                    There's no withdrawal symptoms, per se, for most people, the addiction is purely psychological from "trying to drive with only 3 tires sucks"

                                                                                    • __float 3 hours ago

                                                                                      That's not really an "addiction" by any reasonable meaning besides "something I do often".

                                                                                      The actual meaning is more complex, involving inability to stop, negative effects on your life, etc. - none of which apply to wearing your glasses or breathing.

                                                                                      • jaggederest 3 hours ago

                                                                                        You... don't think there are negative effects to stopping breathing?

                                                                                        If you can be behaviorally addicted to gambling, or even more aptly eating, you can be behaviorally addicted to medication that doesn't give you any physiological dependency.

                                                                                        > The DSM-5 has re-classified the condition [ed: gambling addiction] as an addictive disorder, with those affected exhibiting many similarities to those with substance use disorder. They both activate a reward mechanism in the brain, causing dopamine release to reinforce repetitive behavior. Both often lead to loss of control.

                                                                                        Edit: to engage more substantively, imagine if your glasses gave you, say, mild skin irritation that progressively got worse with wear, but you chose to mitigate that and wear them anyway. I would rate it at that level.

                                                                                    • thin_carapace 5 hours ago

                                                                                      it's not good to flame people for things they can't control. I also think it's not fair to compare insulin (life saving non synthesizable hormone) vs amphetamine (hard drug that helps people better cope with a society expressly designed to beat them down), because then we forget that dosing amphetamines daily comes with its own price of damage to the body. drugs prescribed for adhd are also very much addicting - if one lets an amphetamine script run out, symptoms of withdrawal will take place, regardless as to how the condition is verbally labelled (which while horrible is also to me not fair to compare with a diabetic dying without insulin)

                                                                                      • xyzzy_plugh 4 hours ago

                                                                                        I've never heard of anyone with ADHD on prescription amphetamines experiencing withdrawal when stopping. At least, not with any symptoms worse than just having ADHD and being unmedicated.

                                                                                        People with ADHD are often amused by referring to amphetamines as a "hard drug" since it has practically none of the typical hard drug effects on them.

                                                                                    • drakythe 7 hours ago

                                                                                      I think it is also worth reframing what "functioning well" means. Society expects certain things of us and our brains function in a way that those things are more difficult. Is that our fault, or society, or some mix? Isn't it possible that society itself could adjust in such a way that people who naturally struggle to sit in a cubicle doing the same thing all day every day could be offered other options? Seems like our capitalistic system that requires "productive" work as measured by those who already control the capital is maybe also a problem here.

                                                                                      I'm on stimulants and I agree that the post you responded to needed reframing. But I think we do ourselves and anyone else who isn't "normal" in body or mind a huge disservice just focusing on acceptance of treatment when there are larger societal changes that could be made.

                                                                                      • OkayPhysicist 6 hours ago

                                                                                        I can't fix society. I can, however, take a pill that lets me hold down a job long enough to not fall into crippling debt.

                                                                                      • schlauerfox 10 hours ago

                                                                                        This Doctor's videos reframed the clinical work and actual research for me, very informative and helpful to me personally. https://www.youtube.com/channel/UC0tLWu7ljYVFPiZQfHjTMsA

                                                                                      • 1659447091 6 hours ago

                                                                                        > it's a serious dysfunction [...] treated ADHD can make you productive "all the time", you end up addicted and pretty much permanently require drugs to function well

                                                                                        On its own, its not "a serious dysfunction". Within the context of operating within the current societal setup for a paycheck that provides basic survival needs, yeah.

                                                                                        It allows me to sit down and do 'something' without being taken completely off task for the rest of the day because someone kept knocking on the door or reading a hostile/complaint email. What that 'something' is is not always 'productive' but now I can do it without everyday things or upcoming events throwing me in a completely different direction.

                                                                                        Meds helps with the alignment issue. If you are taking meds and its making you "productive all the time" and you find yourself addicted to it, I suggest talking to your doctor about that. I had to work with CBT just to form a habit of remembering to take the medication, and it took a few years before I finally started to remember regularly. I still forget on days that dont fit into that routine

                                                                                        • 0x457 7 hours ago

                                                                                          > > you end up addicted and pretty much permanently require drugs to function well

                                                                                          No? First, even when I was taking it almost every day for three years, I kept forgetting to take it. Today, my last refill was in February this year.

                                                                                          I recommend against raw-dogging reality with ADHD without meds. At least so you have baseline "this is what normal feels like"

                                                                                          • poopmonster 5 hours ago

                                                                                            I think it's important to take it case-by-case. Many people with ADHD find stimulant medications positively life-changing. However, plenty of people with ADHD also have a substance use disorder. Sometimes medication is an effective treatment for both issues; other times it exacerbates the latter.

                                                                                            Consider the subreddit r/stopspeeding, a recovery community for people addicted to stimulants. Many, many users share similar stories of being prescribed a stimulant medication for ADHD, then beginning to abuse it. Many of these people really do have ADHD, but find that their lives are better without stimulant medication.

                                                                                          • zenoprax 7 hours ago

                                                                                            > it's a serious dysfunction and it's sad to see that it's being romanticized lately in social media or plainly discredited by some people/media

                                                                                            The author of the article is contributing to this by using their medical diagnosis to "outsmart" the system for writing material. Presenting a proper ADHD assessment as merely an online test just adds fuel to the fire (and if this is the only interaction they had I am skeptical of the assessment procedure).

                                                                                            > and while treated ADHD can make you productive "all the time", you end up addicted and pretty much permanently require drugs to function well

                                                                                            That's an unfair and sweeping characterization of the immediate therapeutic benefits and long-term health outcomes of individuals.

                                                                                            • nullpt_rs 4 hours ago

                                                                                              Why assume malicious intent? I am well aware that the test isn’t just some Math.random() and even includes quotes from the official site that talk more about how their scoring engine works.

                                                                                              I don’t think I was trying to “outsmart” anything, I’m just a naturally curious person

                                                                                              • zenoprax 3 hours ago

                                                                                                I don't think you had bad intentions. You may know the testing is more involved but there is a common perception that people can just do a single online test and get a diagnosis. People should be informed that it's just one indicator of many. I apologize for my "writing fodder" phrasing though, that was rude on my part.